MyBlackBeasts
02-21-2020, 06:12 PM
Hi everyone, a few of you may know this so as today brought good news I wanted to post what's going on.
In October I had a routine foot surgery performed on both feet to eliminate the chronic debilitating pain I was in (Neuroma).
A week after returning from my Mo's Speed Shop/FL trip, a follow up exam found the right foot healed up fine bur left foot did not.
The Dr was going to have to re-open site, debride and re-close but 1 day before the scheduled procedure I went to ER with huge pain & swelling of foot, ankle & lower leg. Was admitted to hospital 12/16/19 with Pseudomonas infection which turned to osteomyelitis.
Was released the afternoon of 12/20 and required to stay home on IV antibiotics (Cefepime 3 times a day for 8 weeks) praying they took care of the infection in time to avoid amputation/bone removal.
After 2 weeks pain free I started swelling and pain again and found staph infection in tissues causing cellulitis. Added a 2nd antibiotic (Daptomycin 1 time daily for 8 weeks) which kicked the cellulitis by 3rd dose - finally done 3/12/20.
After a few weeks the doctor became worried as the wound was not healing so he became concerned there was a blood flow issue.
He referred me to a GREAT cardio/vascular specialist (#1 in state of WI & on the board at Froedtert).
1) Abnormal EKG & failed stress test - Heart Catheterization revealed no significant problems (much to my surprise!). Stress test fails you with 1% blockage or 100% blockage
2) Arterial angio of both leg arteries. Results = all good. No blockages (much to his surprise as he was thinking the issue would be here)
3) Venal angio of both leg veins. Results = some refluxing in both leg (femoral) veins which will require ablation but not bad enough to cause the main problem.
4) IVUS - today. Ding Ding! We have a winner!!!
Today's IVUS is a success!
We have a diagnosis and a cure!!!
I have May-Thurner Syndrome.
https://www.webmd.com/dvt/may-thurner-syndrome#1
The Iliac artery compresses the Iliac vein.
Both left and right side Iliac veins are 100% blocked.
He opened left and placed a stent.
This is exactly how mine looked (except I wasn’t pregnant. :P)
https://www.youtube.com/watch?v=ybLM163Wlq0
(https://www.youtube.com/watch?v=ybLM163Wlq0)May-Thurner is extremely rare and nothing you do can cause it. Simply a mechanical issue in the human body - a design flaw.
I go back 3/13 to have right side stent placed.
Then left leg Venal ablation on 3/11 and right Venal ablation to be scheduled.
Dr is 100% certain the wound will now heal up very fast.
The light at the end of the tunnel is shining VERY bright!!! :-)
As bizarre as it sounds, I’m glad this infection happened. If it hadn’t, I could have died. Undiagnosed May-Thurner can throw DVT clots and cause all kinds of other icky stuff!
Thank you, Bill.
In October I had a routine foot surgery performed on both feet to eliminate the chronic debilitating pain I was in (Neuroma).
A week after returning from my Mo's Speed Shop/FL trip, a follow up exam found the right foot healed up fine bur left foot did not.
The Dr was going to have to re-open site, debride and re-close but 1 day before the scheduled procedure I went to ER with huge pain & swelling of foot, ankle & lower leg. Was admitted to hospital 12/16/19 with Pseudomonas infection which turned to osteomyelitis.
Was released the afternoon of 12/20 and required to stay home on IV antibiotics (Cefepime 3 times a day for 8 weeks) praying they took care of the infection in time to avoid amputation/bone removal.
After 2 weeks pain free I started swelling and pain again and found staph infection in tissues causing cellulitis. Added a 2nd antibiotic (Daptomycin 1 time daily for 8 weeks) which kicked the cellulitis by 3rd dose - finally done 3/12/20.
After a few weeks the doctor became worried as the wound was not healing so he became concerned there was a blood flow issue.
He referred me to a GREAT cardio/vascular specialist (#1 in state of WI & on the board at Froedtert).
1) Abnormal EKG & failed stress test - Heart Catheterization revealed no significant problems (much to my surprise!). Stress test fails you with 1% blockage or 100% blockage
2) Arterial angio of both leg arteries. Results = all good. No blockages (much to his surprise as he was thinking the issue would be here)
3) Venal angio of both leg veins. Results = some refluxing in both leg (femoral) veins which will require ablation but not bad enough to cause the main problem.
4) IVUS - today. Ding Ding! We have a winner!!!
Today's IVUS is a success!
We have a diagnosis and a cure!!!
I have May-Thurner Syndrome.
https://www.webmd.com/dvt/may-thurner-syndrome#1
The Iliac artery compresses the Iliac vein.
Both left and right side Iliac veins are 100% blocked.
He opened left and placed a stent.
This is exactly how mine looked (except I wasn’t pregnant. :P)
https://www.youtube.com/watch?v=ybLM163Wlq0
(https://www.youtube.com/watch?v=ybLM163Wlq0)May-Thurner is extremely rare and nothing you do can cause it. Simply a mechanical issue in the human body - a design flaw.
I go back 3/13 to have right side stent placed.
Then left leg Venal ablation on 3/11 and right Venal ablation to be scheduled.
Dr is 100% certain the wound will now heal up very fast.
The light at the end of the tunnel is shining VERY bright!!! :-)
As bizarre as it sounds, I’m glad this infection happened. If it hadn’t, I could have died. Undiagnosed May-Thurner can throw DVT clots and cause all kinds of other icky stuff!
Thank you, Bill.